MS: My Story with Multiple Sclerosis
Went to the doctor today and the results of the MRI were good.
so OB is here. He came in on 11/7 and he’s been “terrorizing” me ever since. He AND G are taking jabs at me every moment that they can….talking about how slowly i climb the steps, how i get into the car – jokes cyah done (continuous trash talk)! My mother comes in tomorrow and i know that it’ll be us against them for the entire time that she’s here.
It’s all good though – that’s how we do. I’ve said it before, I’ll say it again – if i don’t laugh, i’ll cry and from where I sit, laughing is the better option!
so OB is here. He came in on 11/7 and he’s been “terrorizing” me ever since. He AND G are taking jabs at me every moment that they can….talking about how slowly i climb the steps, how i get into the car – jokes cyah done (continuous trash talk)! My mother comes in tomorrow and i know that it’ll be us against them for the entire time that she’s here.
It’s all good though – that’s how we do. I’ve said it before, I’ll say it again – if i don’t laugh, i’ll cry and from where I sit, laughing is the better option!
Well…we are here. I am scheduled for my 1st MRI (happy times – NOT) since being on Tysabri tomorrow morning. Luckily i didn’t have to go thru the last rigamaroll (shenanigans/bullshit) like the last time because this time I’m having it done in house at the MS Center. The other good news is that it’s only going to be of my brain so it won’t last 2.5 hours – i really can think of a million other things i’d rather do on a Saturday morning!
This is how the MS Center tests to see if I’m at risk for the brain infection and maybe I’ll also see if Tysabri is helping at all (diminished/decreased/no additional lesions on my brain)…not sure if it’s too soon to see all that – it’s only been 7 months. I have a follow up with my neuro next Tuesday so we’ll see.
Having Multiple Sclerosis has taught me that i can lime with myself. When we go to fetes and i have to sit in a chair, i don’t expect everyone to lime around me and sometimes, they don’t. i’ve always enjoyed my “Stacey” time, but now more than ever i have it.
I am sure that i’ve always been aware of that, but it really hit me in Miami carnival that i’ve become (by force) a bit of a loner. I was on that truck for the ENTIRE day by myself, limin with strangers who may have jumped on and off – let’s face it, it’s not the easiest thing in the world to get on and off those things, so i certainly didn’t expect anyone to do it jes to come and lime with me.
In other news…i was only stuck ONCE yesterday altho my blood, once again, was as slow as molasses going into the vials but at least they got the amount they needed this time around. I drank much more water than i normally would, on the day of, this time so maybe that made a difference to the accessibility of the vein? I will put the port on a back burner for now and see how things go the next few times.