MS: My Story with Multiple Sclerosis
was not a good day – it was a “lovely” 30 degrees last nite and never rose above 40ish all day. I was supposed to go out but opted not to because my legs were not working as they were supposed to at all. i know that u’re tired of hearing me say this, but I don’t care what anybody says, my MS works better in warmth/heat and acts like ah ass in the cold.
is!) and I take them both at 8am, 4 pm and midnite. when i take the 8am dose – i’ve already started working and it’s unreal just how sleepy i get SOME days. On those days, the drowsiness kicks me in the face around 9 – 9:30 – i always fight thru it and by 10:00, i’m good. when i take it at 4? NOTHING – ABSOULTELY NOTHING!!!! cept for the time on the truck in Miami carnival and i was bepin like fus time (nodding off like the first time ever)! Saturday nite, De ParangSide had their kick off to parang season and of course i was at the fete at midnite when my handy dandy alarm went off. i was good for a while and then here comes the drowsiness. Now falling asleep at home is 1 thing, dozing in the middle of a party? totally nother story!!! but it was unbelievable and i couldn’t fight it…so what did i do? i had to slink off to the back of the place, hide in a corner and sleep for about 1/2 hr! when i was done, i woke up and continued partying like nothing had happened.
there is no rhyme or reason to when I’ll be sleepy and for how long. it’s crazy!
alright, so I’m sold on the use of the cane; it helps me most of the time. Now, don’t get me wrong, there are times when having a cane does not help at all, but those times are few and far between. i bought 2 – a black and a brown, c’mon now, a chick needs to be stylish and co-ordinated. They have both served me quite well and so now, i think it’s time to put a cane on my christmas list.
it was kinda bitter sweet for me – mostly sweet. On one hand, it was GREAT as usual – G and I always go waaaaaaaaaaaaay out for Thanksgiving – I’m sure that someone out there might say we do too much, but we love it, love doing it, love cooking up a storm and will continue to do so (in fact, last year we didn’t do anything – i went to a friend’s house and it just wasn’t the same). I was off for the entire week, G2 and family were here, both parents were here and then on the day itself others came over to eat and lime. We had a fantastic time!
We don’t ever ask anyone to bring any dishes. We do all the cooking – cept the turkey which we buy from Popeye’s; it’s a cajun deep fried turkey – delicious. Anyhoo, so G likes to cook and so she normally has more dishes to do than i, but somehow this year, i was only responsible for 4.
Here’s where it got bitter – I got thru 1.5 dishes before the MS kicked in and said, “uh uh – ur ass needs to sit down and relax!” I’d been standing for too long i s’pose and i just couldn’t walk or stand up anymore. I prepared the first dish, then had to improvise and continue preparing the 2nd while sitting at the table, rest for a few when that was done and then use a chair by the stove to do the others. In retrospect, i guess it was a good thing that i was only responsible for 4. It sucked! i wasn’t happy about it! i cursed the MS and I cursed it loud! I just couldn’t do my thanksgiving as i was used to – i didn’t appreciate that at all! I’m sure that i knew that it could/would happen, but i still wasn’t totally prepared for it when it did. oh well, wha ah go do (what can i do).
Here’s hoping that everyone had a great thanksgiving with family and friends like i did!
wow!!! who woulda thunk it! it’s already been 1 year.
I started this blog a year ago and it has evolved into something that I never thought that it would. I’ve been told that “it’s inspiring”, “it’s funny”, “it’s a the best thing I’ve read since…”, “I like to see what pictures u use” and honestly I’ve thoroughly enjoyed writing it…Never in my wildest dreams, did i think that it would evolve into what it is now – I actually had to be convinced to start writing it!
What do u do at this stage? I haven’t a clue, but I thought that I’d share some of my favorite posts: