The Formula

it only took 8 months…but i think i’ve finally figured it out.  I always try to drink at least 6 glasses of water a day – i tell everybody that the only things that i drink are water and alcohol :-).  Anyhoo, so 6 glasses a day, so i figured i (my veins) was well hydrated.  WRONG!  obviously something wasn’t right because i would always have to get stuck so many times on infusion day.  but…i think that i’ve figured out the right formula….

I actually need to drink about 4 glasses the NIGHT before and then 6 more the morning of!  I did that the last 2x and there was no drama each time -the vein popped right up and blood was flowing ( ah lil slow, but that’s beside the point).

4 more shopping days before Christmas!!

Tysabri

I didn’t want to say this out loud before but I think that the Tysabri might actually be working.  I can see a slight improvement.  Trust me, I won’t be running any marathons anytime soon, but I am almost positive that there is a small improvement.  Now, I’m not sure if someone looking at me can tell if there’s a difference, but I can feel it, altho…

My mother surprised OB and G last week and came back up here for Christmas and i overheard her say to G some day, “but Stacey was walking real good this morning…”, a good friend came to see me for a brief 24 hr stint last week and by the end of the day that i’d picked him up at the airport, i was struggling but the next morning, he said to me, “…but A  A, where u running going?”  A few weekends ago, we went to do our Saturday ritual (get eyebrows done) and G was amazed at how well i was walking.

On all the occasions, i had been walking “normally” – well –  as normal as I can be.  It was always that in the mornings, I would struggle less than at the end of the day, but i definitely feel better and look better these days.  There may be a light at the end of this tunnel afterall.

hmmm, Christmas

I  realize that not only did having MS mess with my thanksgiving this year, it’s also going to mess with Christmas.  I’ve spoken about routines – managing my MS is all about routines; changing, adding, removing routines as you go.  I guess because it wsn’t this time of year, i never thought about the holiday routine – cooking up a storm on thanksgiving, shopping way too much for Christmas, making puncha creme, rum punch, sorrel and i can go on.

well…this year i cannot shop like i want to and it is putting a little (just a little) damper on my Christmas spirit.  I have to shop online – UGH

  • Altho I’m no big shopper, it’s not as much fun as going to the store
  • I’ll have to buy the specific item – there is no shopping around (altho one can argue that that’s a good thing – less $ spent)
  • Kinda limited to the one store – kinda sorta, other stores won’t catch my eye as I’m walking out the mall
but i guess it is what it is and there isn’t much that I can do about it.  Always have to keep the alternative in mind and that is, going to the mall and then getting depressed WHEN i can’t walk out!
I still hate MS!

Boots

I’ve said it once, i’ll say it again, “I HATE WINTER”, “I HATE COLD WEATHER”…in fact, the temperatures that we’ve been having here in Atlanta in Dec are a little concerning to me because Lord knows what January is going to bring – but I digress.

So there is absolutely nothing i like about winter – cept some of the clothes….a nice sweater, absolutely LOVE scarves… and boots.  I think that 1 of the best things that a woman can wear during the winter is a pair of high heeled boots.  Unfortunately my days of that are over šŸ™  I am deathly afraid of what could potentially happen to me if i put on a pair of high boots – it can only end in disaster.  The last pair of boots that i bought were completely flat – hate that – they are nice, but so not me.  Now don’t get me wrong, even before the MS, heels were not really my thing, but every shoe that i owned had to have some height – let’s face it,  i’m not the tallest gal at the party!

Now, I’m relegated to flat boots – boots with no heel, no height – nothing!

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