Category: Random Thoughts

Good Thing

The damn Life Alert wristband is only for inside the house.  It is soooooooooooooooo not attractive and not an accessory that i would wear AT ALL.  On top of which my wrist is so damn small, it is too big for me.  LOL

I must say, i’m pretty darn proud of myself.  I actually remember to wear it (at least during the week); the weekend is iffy because I’m out and about for the most part.

Necessary Evil

“ALL SENIOR CITIZENS NEED LIFE ALERT”
I’ve always hated that ad.  for those who’ve never seen the ad, it’s for the Life Alert system.  Subscribers of Life Alert wear either a necklace or a wristband with a button they can press while they are in their homes if they have fallen and can’t get up/need medical assistance.  It’s a very corny ad and definitely not 1 of the better ones on TV.
I’ve said time and time again that i hate having MS.  It’s caused me to start doing things that i never did before, stop doing things that i’ve enjoyed all my life and just in general make adjustments to my life (some okay, some not so okay) that i probably would not have otherwise.    I’m at home by myself a bit – i work from home; my entire work day, i’m at home alone.  After my last nasty fall, i realized that maybe i might have to make yet some more adjustments.  I was lucky that time; if God forbid, it happens again, i may not be as lucky.  UGH!!!
i signed up for Life Alert – i hate having MS.  So now, there’s a 2way speaker in the house and if necessary, i jes press the button on my wristband, a man speaks to me via the speaker and i let him know what the deal is.  if he can’t get me via the speaker, he calls my cell phone (i found that out the hard way the other nite – i got into bed and was trying to go to sleep and all of a sudden heard a man’s voice in the house – i had NO IDEA what the heck was going on, but i didn’t freak out.  i got up to investigate (kinda like those dumbasses in the movies who u shout at NOT to do what they’re about to do) when my cell phone rang and it was the Life Alert man.  Apparently i had unknowingly pressed the button as i was getting into bed!
i view Life Alert as a necessary evil – i really don’t like the fact that i had to sign up for it, but i realise that it is better to be safe than sorry.

Dr.'s Visit

so i went to my neuro last week Tuesday…did a 2fer – went to see him and did my infusion one time (1 stick – woohoo!).

The disease is stable – my exam went well – nothing to report on that.  he asked me if i’ve figured out the correct combination of all the drugs to take, i said yes and told him that i don’t want to change the pill regimen.  the things are not a bother and don’t impact my life negatively in any way – got rid of all the napping, so i’m happy.

there is a blood test that he is going to perform to show if i’ve been exposed to the JVC virus (the one that causes PML – the brain infection); (i can never say that without laughing out loud – i think it’s so damn ridiculous)!  It’ll be a year since i’ve been on Tysabri, so they like to test at a year to see if the patient tests positive to the anti virus and then make a determination as to whether or not Tysabri really is the way to keep going.  I hadda (have to) say, that i hope that i can stay on it…i don’t want to go back to a daily shot, nor do i want to start takin the new oral pill because…well it’s new (that coupled with the fact that there’s already been some BAD thing (i can’t even pretend to remember the word he used) reported).

They’ll take the blood for that test when i go for my next infusion – must remember to drink a bucket of water the day before and day of so that my blood will flow that time, so that they can get enuf to do the test!

Dr.’s Visit

so i went to my neuro last week Tuesday…did a 2fer – went to see him and did my infusion one time (1 stick – woohoo!).

The disease is stable – my exam went well – nothing to report on that.  he asked me if i’ve figured out the correct combination of all the drugs to take, i said yes and told him that i don’t want to change the pill regimen.  the things are not a bother and don’t impact my life negatively in any way – got rid of all the napping, so i’m happy.

there is a blood test that he is going to perform to show if i’ve been exposed to the JVC virus (the one that causes PML – the brain infection); (i can never say that without laughing out loud – i think it’s so damn ridiculous)!  It’ll be a year since i’ve been on Tysabri, so they like to test at a year to see if the patient tests positive to the anti virus and then make a determination as to whether or not Tysabri really is the way to keep going.  I hadda (have to) say, that i hope that i can stay on it…i don’t want to go back to a daily shot, nor do i want to start takin the new oral pill because…well it’s new (that coupled with the fact that there’s already been some BAD thing (i can’t even pretend to remember the word he used) reported).

They’ll take the blood for that test when i go for my next infusion – must remember to drink a bucket of water the day before and day of so that my blood will flow that time, so that they can get enuf to do the test!

March 17th

Tomorrow is St. Patty’s Day – drink green beer…eat green food.  for people like me who have given up something for Lent (meat), it’s your 1 free day!  I can’t wait to dig into some good ole meat tomorrow…i have to say tho, it’s really not fair that this year st. patrick’s day – the 1 free day that we have – falls 1 week after the beginning of Lent!

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