Category: Random Thoughts

Cursing the MS Gods

I spent all day cursing the MS gods.  I have PT every Tuesday morning and the last thing my therapist does before i walk out of her office is stretch me out – it’s my favorite part of every session.  Well this morning was no different, except she did a new stretch – ok, no biggie.  while i was walking out, i felt a little out of sorts, but i just chalked it up to the new stretch and paid it no mind.  i get home and 3-4 hrs later i find that i am still feeling and walking really badly.  I’m thinking, “ok, must tell Allison that she can do that stretch no more because i can’t have it messing up my entire day like this again.” 

little background here…my alarm starts going off at 6:45 when i have to go to work (i say start because boy do i snooze), then it goes off again at 8 for medication.  Well on Tuesdays, i have to wake up earlier because my appts are at 7:30.  So i have a separate 1 set to wake me up on Tuesday mornings and the 1 at 8 doesn’t even go off because that’ll be in the middle of our session, so i take the meds just before i leave the house.   
As usual, at 4:00 i get the reminder (no alarm during the week, i just have an Outlook reminder) to take the afeternoon pills and wouldn’t u know it  – the am pills were still in that section.  Funny thing is, i have a vague recollection of taking them, but who knows maybe that memory was from yesterday – altho i could swear that it was this morning.  This has happened before so i am confident that it had nothing to do with the new stretch or the MS per se, it was just the fact that i didn’t take the pills!
So now, the MS gods are looking down and cursing ME for once again blaming them/it when they did absolutely nothing out of the ordinary.

MRI Time Again

So i had a 2fer last week Friday…had to go in for infusion #14 (time waits on no-one; can’t believe it’s been so long already) and did my neck & spine MRI on the same day.  The MRI was scheduled first, but they sent me in the infusion room for the nurses to set up my IV “so that i wouldn’t have to be stuck twice” – LOL!!!  (when they do the MRI, they inject me with a dye so that the lesions/scarring would show up more clearly so the thought is that they would use the same IV site that the nurses set up for the infusion.)  As  they say  down here in the south, “Bless their hearts”…they really mean well, but on the day that I’m only stuck twice I’m extatic! As it turns out, i was stuck twice to set up the IV – such good times.

Anyhoo, so i was about to go into the tunnel for the MRI and i asked the radiologist if i should settle in for about an hour and she said, “no…it’ll only take about 15 mins”.  15 mins????!!!!   She couldn’t be serious.  For real????  I’d adjusted my medication time so that i would fall asleep right about the time i was in there…i was skeptical and even wondered if she knew which areas i needed to have done but i didn’t say anything (i should have – if they didn’t get all areas i don’t think that Aetna will pay for another), i mean i was scheduled for a neck and spine MRI so she must know what she was doing.  I couldn’t believe it – about 15-20 mins later i was out!  i think that it was the best MRI i’d ever had done – even though i think that i dint insert the ear plugs properly because it was extremely loud in there (louder than normal, but then again, this wasn’t a normal MRI experience)!

No results yet; i thought that i would have been able toget them soon after, but i couldn’t.  I called this morning and left a message so hopefully someone will call me back soon with the results – fingers/toes/legs/eyes all crossed that there’s been no progression.

Cane Holder

a very simple looking thing that, when i got it in the mail, i thought – this is some bullshit; how the heck is this supposed to work??? in fact, if OB wasn’t here at the time i probably would have sent it right back to Amazon and asked for my money back!

well wasn’t i in for a surprise…the thing actually works so damn well it’s not funny.  it essentially holds the cane upright when it’s placed against any straight edge (table, countertop, anything like that); it’s not as savvy if the edges are rounded but it stilll is better than trying to lean it up somewhere. 

well…a few fridays ago we went out…hit 2 places that nite and had a whale of a time.  I woke up Saturday morning to go do whatever the hell i had planned and went to prop up the cane and noticed that the holder was gone!  what the?!?!  when did that happen???  Don’t u know that i was feeling like a fish out of water for the entire time that i didn’t have my cane holder.  I couldn’t believe just how attached i’d become to the damn thing – i guess me and the cane are becoming 1 after all…

a couple days later, i promptly went back to Amazon and ordered not just 1 but a pack of 3 – jes in case!  A gal needs to be prepared at all times.

Trini Terms according to Stax

so a friend/reader who is Trinidadian and enjoys reading suggested that i create a glossary of terms for the Trini slang/terms that i use.  i have the disclaimer of “lime” at the top of the page and most times i remember to put the meaning/translation in brackets, but when i don’t, anyone can refer to my new page “(my) Trini Terms Dictionary”.  I have “my” in brackets as a reminder that this is MY dictionary and meanings may differ from the Cote Ci Cote La (the official Trini dictionary) – yes it exists.

Something i hear often is, “i like those Trini terms” or “trying to keep up with all the Trini terms” so i thought that the glossary of sorts is a good idea.

so it’s a work in progress – i’ve included the link at the top…fellow Trinidadians, feel free to send me suggestions or additional/better meanings if u wish!

What I Miss the Most

the ability to dance!

I’m talkin bout “bussin ah wine (the Trini dance for soca – gyrating ur hips to the music with ot without a partner(s))“, ballroom dancing, any kind of dance.  I’ve mentioned before that i cyah (cannot) wine no more – wining with a cane and a stiff left leg  (my left side is the problem side – it’s weaker, the left leg is generally the stiff one (it always wants to be straight)) is not pretty and does not feel right, so wining is out of the question.  All i can do these days is listen to the music, sway side to side (a slight mini wine if u will) and use my cane as a prop to stomp to the beat and in fact Saturday nite, i used it as my flag/rag and was wavin it in the air 🙂 – UGH!!!

I used to dance when i was growing up – modern dance – and always loved it.  As i got older i wanted to learn how to tango, so bout 5 years ago, i signed up with a ballroom dancing school.  I was quite good, if i do say so myself, but had to drop out when i realized that i would need to rob a bank to continue.  I was able to afford the lessons at first, but as i advanced and got to the level where i could perform at exhibitions and such, the cost became too much and even though i might have gotten away without robbing the bank the 1st year – beyond that there was no telling.  So instead of risking jail for a hobby, i decided to let it go.  For the short time that i did it, i enjoyed myself thoroughly and as i mentioned, i was quite good.

Nowadays when i’m at a fete or see people dancing anywhere in general, i feel a tug at the heartstrings – it saddens me just a little.  When we’re partying, most of my friends will come and take a wine on my chair or me (wish i had a picture to share) – just depending on the type of chair 🙂 and i love them for that – but it’s just not quite the same.

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