Christmas

was great!  oh what a time we had in Vegas.  I’m back at work as usual, so no big winnings on this trip, i spent way too much money, but that’s why i work so hard on a regular basis…but oh what a time!!!

so…a few things…

  • i was able to rent a scooter (a good one too, boy was it fast!) for the entire time that i was there.  those who’ve been to Vegas will tell u, it’s a walking city and there was no way that i could survive without one.  it was the 1st time that i’ve ever been out and about in a scooter and i noticed that people generally didn’t talk to me…is that normal?  hell if i know, but for the entire time, there were about 2 people who actually looked at me in the scooter and asked me if i could walk in their establishment/thru the area/wherever i had to go – they would always ask G “if she can walk…” again, is that normally how the disabled are treated?  dunno but it was somewhat insulting.  “HELLO!!  I’m right here”
  • You “walkers” – LOL – are amazing.  There were quite a few collisions because people were walking and looking EVERYWHERE but where they were going – they walked right into me!  i am used to lying down on my car horn if necessary, didn’t realize that i’d have to do so on a scooter as well – CRAZY!!!
  • of course, shit woudn’t be normal if i didn’t fall.  It only happened once and it was in the hotel room; it really was a “good” fall, but it wouldn’t be right if i didn’t mention.
  • back to the scooter…G sped us thru a few hotel lobbies one nite because she didn’t feel like walking back to the room.  we had a long way to go and it was at the end of the nite, so she hopped a ride – that was fun; scary at some parts but fun! 🙂
here’s a better one of our faces…we look kinda weird in the top picture…

All in all, we had a great time and now back to the grind, business as usual because all good things have to come to an end.

MERRY CHRISTMAS!!!

i’m a lil early but…

i hope that santa is good to all of u.  he’s been good to me so far, i’ll be in my in favorite place – CANNOT WAIT!  if i’ve been a really good girl this year, i’ll come home with a fatter/heavier pocket 🙂  

Anyhoo, all of you be safe, be merry, drink plenty sorrel and eat plenty ham…

And the “Winner” is…

Tysabri!  I’m sticking with Tysabri. 

Yeah there’s a possibility of PML, but at least i know that that exists and there is a plan in place to mitigate.  My feeling is that Gilenya is just too new and i’m willing to bet my last dollar that something is going to emerge that they didn’t anticipate a few months/years down the road.  I may lose that bet and with any luck i will, but u know how drugs go!  There already have been some things happening too… a few people have died including 1 person who died 24 hrs after taking their first dose – HELLO!  there is still investigation pending into whether the drug had anything to do with it but…

I’m not stupid, i know that there are risks with all drugs and death probably is the extreme case but i’d rather deal with the known risks of Tysabri than the unknown (for now at least) risks of Gilenya.  We (my neuro and I) talked about the 2 therapies and he was also somewhat against my starting Gilenya.  *side bar* Sometimes the way he talks about Tysabri tho, i wonder if he’s on the baord of directors or was instrumental in creating the drug.

Anyhoo…so i will continue to endure the games with my veins (got stuck twice yesterday), the MRIs every 3 months (did i ever mention that as far as I can tell, i have NO side effects from the Tysabri?) and the knowledge that i’m at a higher risk for development of a brain infection to stick with “the devil i know”.

And the "Winner" is…

Tysabri!  I’m sticking with Tysabri. 

Yeah there’s a possibility of PML, but at least i know that that exists and there is a plan in place to mitigate.  My feeling is that Gilenya is just too new and i’m willing to bet my last dollar that something is going to emerge that they didn’t anticipate a few months/years down the road.  I may lose that bet and with any luck i will, but u know how drugs go!  There already have been some things happening too… a few people have died including 1 person who died 24 hrs after taking their first dose – HELLO!  there is still investigation pending into whether the drug had anything to do with it but…

I’m not stupid, i know that there are risks with all drugs and death probably is the extreme case but i’d rather deal with the known risks of Tysabri than the unknown (for now at least) risks of Gilenya.  We (my neuro and I) talked about the 2 therapies and he was also somewhat against my starting Gilenya.  *side bar* Sometimes the way he talks about Tysabri tho, i wonder if he’s on the baord of directors or was instrumental in creating the drug.

Anyhoo…so i will continue to endure the games with my veins (got stuck twice yesterday), the MRIs every 3 months (did i ever mention that as far as I can tell, i have NO side effects from the Tysabri?) and the knowledge that i’m at a higher risk for development of a brain infection to stick with “the devil i know”.

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