Category: Random Thoughts

since living with this wretched disease, i have developed a dislike of doing some normal, regular, run of the mill things. 

i absolutely DREAD when i have to get on an elevator when there are 3 or 4 in a row. 

• picture it:  i approach the elevator bank and press the button.  problem is, the buttons are close to the end of the row of elevators and when i press the call button, the elevator at the opposite end is the one that gets there – UGH!!  i NEVER make it to the elevator before the doors close for it to start moving.  of course, i’ll have to wait for that one to leave before pressing the button again in the hopes that one closer to me will open.  in fact, 2 days ago, it was the one right in front of me (i can’t remember what was going on) and i had to re-press the button to get the doors to stay open. when we were in Vegas, it was happening even when i was on the scooter, but luckily someone else soon came who was able to hold the doors for me. 

i move so slowly that i hate having to come out of a car if it’s raining – not torrrential rain, a slight drizzle.

• i lived at home until i was 19 and i NEVER owned an umbrella.  what do they say about old habits?  i still don’t own an umbrella so if i have to get out the car and it’s raining and i’m by  myself,  i’m screwed.  i take so long to get out (and walk of course) that by the time i get where i’m going, i’m soaked!  You’d think that i’d buy an umbrella eh?  haven’t yet!

i prefer not (i wouldn’t say hate) to get in a car on the non drivers side

• my left leg is weaker, so 6/10 times, i need help to get into the car unless i get in behind the driver. 

i hate getting to a door and realizing that it is a “Pull to Open” and there’s no handicap thing to open it automatically

• opening doors while being a lil unsteady and walking with a cane is jes not an easy thing (for me) to accopmplish

anyway, i’m off my soapbox for today…back to ur regualarly scheduled program…

how will my “dream day” be spent…hmmmm…

I will have to thank God for that day – that’s for sure!  Can you imagine?  🙂  i think i’ll stay up for 24 hrs that day.

after that…well, i will run EVERYWHERE – LOL.  U know how lil children have all dat energy and we just don’t understand where they get it from?  well that’ll be me on that day.  LOL – there’ll be no stopping me.  Of course it goes without saying that my canes will definitely have a day off to rest and rejuvinate.

i think i’ll hold my pee until the end of the day – okay,so maybe that’s not the best idea, but i definitely won’t be going to pee jes because there’s an usable, available restroom.

hopefully it’s a saturday and there’ll be some fete for me to go to.  If not, i will find somewhere and go and “wine an touch meh toe”…oh, if it’s a weekday, i’ll be calling in that day – fo sho!

It’ll be a day FREE of pills and the life alert bracelet (even tho every now and again i have those days anyway).

I think i might run up and down the steps a few times just for the hell of it…what else, what else…I’ll be in my glee that’s for sure – lol…oh well. 

a gal can dream…

I found myself in a bit of a pickle this past weekend.

I was caught in an awkward, slightly embarrassing situation that for the life of me, i couldn’t get out of.  I wasn’t at home, spent the night out and very long story short, i ended up on my back on the floor of a room and COULD NOT MOVE!  Luckily, i was by extended family so as embarrassing as the shit was, it could have been much, much worse.  How do i know for sure that it’s okay to blame the MS?  My heart was racing, i really was in a panic and trying so hard to get up but i just couldn’t – i really was stressing!  when i say, my body wasn’t going anywhere, i mean it wasn’t going anywhere – all i could do was move my arms.   I went as far as to call out for help, but alas, that didn’t work either…

Eventually i told myself that if i just lay there and try to be calm, everything would be okay.  That worked…as soon as my heart stopped racing and i calmed down, I was able to get up and move around.

Fucking MS!!!

yesterday morning i fell in my kitchen.  I hit my head (and boy did it hurt) but all was well afterward, so no need for concern.  i also forgot about 1 that i’d lost track of – don’t know what made me think of it the other day so i’m up to 7 for the year 🙁  7 falls in 4 months – oh goody!

so…long story short, i was getting a paper from a guy to sign and reached out my left hand so that i could sign with my right and the conversation went like this: