Category: Random Thoughts

LOL.  unbelievable…

i have NEVER seen my vein protrude/stand up at attention like it did on Friday when i went in for my 1st rounds of steroids.  it was unbelievable…Anita went as far as to call over the other nurses to “look at this! wow..come see, come see.  this has never happened in here before”.  it was unreal!

anyway, so it was administered; there were no issues although the 1 thing that i forgot bout the process is that it leaves one helluva NASTY metallic taste in ur mouth.  it’s almost like everything jes tastes bitter for a while after…i ate a few pieces of candy to see if that would make a difference and it did but only for as long as it was in my mouth.  for a few hrs after, i still had that bitter after taste hanging around.  say what, small price to pay.

so far, so good…nothing else to report

yesterday morning i got a call from a pharmacy…still not sure WHAT pharmacy but the chick said that the pharmacy works with Biogen (the maker of Tecfidera) and supplies patients with the drug.  so i told her that MY pharmacy is Caremark and i usually work with them to get my medication shipped etc etc. She responded that HER pharmacy partners with Biogen to

that’s when she told me that i won’t have to pay for the drug because the patients on the quick start program are the ones whose insurance are not paying for the drug and Biogen will supply for free.

Well now i’m more confused!  i swear Caremark automated service has been calling me every friggin day to set up the drug shipment; i’m not sure just how many representatives i’ve told that my doctor wants to start the ting in June!!  and i’ve already confirmed that my copay is $50 and i was placed on the list for the special $10 copay program so i’m not sure what the ass is really going on!

so…bottom line – she is going to call me back on 5/28 by which time i should have spoken to Caremark to set up shipment, confirm payment etc so i’ll be able to tell her whether or not to send me the drug.  I named this post “and the games have started” but hopefully everything will work out at the end of the month.

*SMH*…it’s really all i can do

btw, today is my first steroid session.  i really am just keeping my fingers, eyes, toes, legs crossed that i have no kinda setback and things go as well as they can going forward.

Ah gone so…allyuh hol it dong and have a great weekend!

dare i look forward to this?  setups!  it’s indoors this year (that sucks) so they have absolutely NO reason to shut it down do they?  will the asshole, moronic cop (i have come to the realization that cops are MORONS) whose sole purpose in life is to find out where cooler fete is every year (u cyah tell me he doh exist) and make life miserable for those of us who go and have high hopes every, flippin, year find a reason?  yeah he will…probably will say that we obstructing the road because of the parking situation or something.  i’ll keep u posted…

i was standing in line on Monday to fill a prescription and the lady who was being helped either had a whole lot of questions or liked to talk because she was taking forever.  i was eating some cheese rice cakes and just as i’d put one with alot of cheese dust in my mouth, i heard someone say in my ear, “good grief!  U think she’s asking about all the medications behind the counter?”  of course, like i said i had just placed a dusty rice cake in my mouth, so i didn’t want to bust out laughing because it wouldna been pretty – it was the lady behind me and she was also wondering y the hell it was taking so bloody long…we laughed and i was able to not blow a cheese cloud in her face.

anyhoo, finally the lady being helped was done and it was my turn and of course, there was a problem.  long story short, the lady behind me walked up and started talking to the attendant too, so i said, “oh, so now u just going to cut in front of me???”  she responded with something witty, we laughed and started talking a little.  i was in the grocery so i was using the handy dandy motorized cart and when she said something about laughing and making reference to what was wrong with me, i said, “yes, well in my situation i have to laugh sometimes.”  i shared that i had MS and then she shared that she was there for her epilepsy medication because “watching a seizure just a’int no fun.  I’ve never actually seen it but so i’ve heard.  MS…i really don’t know which one’s worse.”  I couldn’t agree more…i told her about my mother’s theory that if we were allowed to put all our diseases in a barrel and pick out another, we would reach in and pick the same one we initially put in.  Diseases!  they’re ALL WRETCHED!

so after i didn’t get my prescription, i go to my car and as i’m walking to it, i realize “ah shit! the car next to me on my side is kinda close (there were no handicapped spots when i got there so the spot i was in didn’t have the extra space i’m used to).  i knew i wouldn’t be able to open my door all the way and i NEED that.  i was actually able to open my door halfway without banging it against the car (okay good, that’s one step) but try as i might, i couldn’t get my left foot into my car! GREAT!  luckily for me the driver was sitting in the car still, so i had to get her attention and ask her to reverse a little, just so that i could open my door all the way, get my foot in and be on my way.  of course, i had to laugh at myself…couldn’t help it.

happy happy joy joy…fun times with Stacey!

so, like i said before everyone who came out had a great time!  it required some of us to wake up much earlier than we wanted to on a Saturday morning but it was all for a good cause.  I want to thank everybody for coming out again and also want to thank those who didn’t but wanted to; i rhelly cyah ask for more supportive friends/family.  the jerseys  turned out great – thank you Citttizen!! could not have done it without your support either.

Enjoy…

yup. i sprayed my hair orange just for the occasion

(Almost all of) d Limerz Crew

Once again, he eh get no T-Shirt!

OBs and Learls weren’t at the walk but they sported their tees that Saturday am !

cittizen supporting MS/me supporting cittizen