Category: Random Thoughts

Since my titer levels are too high and I cannot go back on Tysabri, I went in to be evaluated to start Gilenya…sigh.

I saw a doctor in the Internal Medicine department. He:

• listened to my heart
• put the stethoscope on my back while I took deep breaths
• shone a BRIGHT BRIGHT light in my eye and looked into it
• asked me to follow the light with my eyes (not my head) 
• and an EKG. 

I guess he was happy with what he saw because he partially approved me. 

“Why partial?” you say. Because they needed blood (to test for? I haven’t a clue). Anyhoo, so I went to the chick for her to draw blood. Well, she stuck the right arm and…at some point, I said to her,”would we  actually see the blood in that tubing (i was hoping it was a new type of opaque tubing so we couldn’t see thru it and my blood was actually flowing)?” The answer was yes. 3 drops of blood came out. Did I mention she had to draw SIX VIALS?!?! Sheesh! She went into the left arm and blood in ah bungahlation – go figure. 

Anyhoo so the next step is to wait for those results and then (of course) there is a waiting period (doc couldn’t tell me how long cuz he is not a MS doctor) between the 2 drugs. I’m going to do as much as I can so that once the waiting period is up, I can get started on Gilly!

happy birthday to me!

My doctor will like me to get started on gilenya as soon as possible. In fact, I was instructed to stop the Tecfidera one time. So I go in on Friday afternoon to get checked out for gilenya – essentially, they have to make sure I’m healthy (other than kiss meh ass MS). They need to do:

• An EKG
• Ah eye test (cuz one of the potential side effects is macular edema)
• Blood work

After those results come back and I’m given the okay, the first dose of gilenya will be scheduled. This drug slows down the heart rate the first time it’s taken so they monitor patients for 6 hours that first time – “I can’t fcuking wait”…Ur heart rate goes back up (usually) by the end of that time period and will eventually go back to normal in 30 days. 

Gilenya is a once a day pill and Dr. Gilbert actually prefers it to Tecfidera (he says it’s a stronger drug) so we’ll see. Stacey prefers and wants Tysabri but I guess we can’t always have what we want.

i hate fucking MS

Everybody loves the scooter III

Happy New Year to you and yours from me