Today’s Post Brought To U By The Number “1”

well wouldn’t u know it…

Friday was my infusion (time really does fly) and guess how many times i got stuck?  ONE!!!!  she did it in 1 go…who woulda THUNK it!  I certainly didn’t think it was possible after all my experiences so far.  AND, i think i’ve also discovered the most comfortable position too.  I think i’ve mentioned before, i would have never thought in a million years that i would entertain the top of my wrist (that nice bony part) – but there is the most comfortable – i can bend, move my hand freely without any issues.  I sit there for about 2 – 2.5 hrs easily so it’s good to be able to move my arm comfortably.
Still don’t know what, if anything, these needle pricks are doing anything for me – but hey, i guess i’ll keep enduring them for now.

Today's Post Brought To U By The Number "1"

well wouldn’t u know it…

Friday was my infusion (time really does fly) and guess how many times i got stuck?  ONE!!!!  she did it in 1 go…who woulda THUNK it!  I certainly didn’t think it was possible after all my experiences so far.  AND, i think i’ve also discovered the most comfortable position too.  I think i’ve mentioned before, i would have never thought in a million years that i would entertain the top of my wrist (that nice bony part) – but there is the most comfortable – i can bend, move my hand freely without any issues.  I sit there for about 2 – 2.5 hrs easily so it’s good to be able to move my arm comfortably.
Still don’t know what, if anything, these needle pricks are doing anything for me – but hey, i guess i’ll keep enduring them for now.

Infusion #2

Geez!  Has it been 4 weeks already? 

The 2nd infusion is tomorrow.  I think i will have to ask for someone other than the chick from last time because I cannot live thru another “catch me if u can vein” incident.  While i didn’t have any side effects to the medication, I really couldn’t do much that weekend because of reverting to how i was before even taking the Ampyra.  That has since gotten better…but this weekend G2 and clan will be here and it will NOT be acceptable if i can’t do much, esp since it’s July 4th and there’s a shitload of limin to do.

Infusion #1

it went well!  No horrible side effects, no horror stories – NOTHING!  whew!!  Actually, the infusion itself was supposed to take an hour…I, of course, was done in half hour but they assured me that wasn’t anything to worry about.  They still kept me for observation afterward and I was a little woozy at the end but it was because i had taken 2 Tylenol PM Xtra Strenght before the procedure.

so I’ve mentioned before that i donate blood regularly and I’ve also mentioned how much I hate needles.  Everytime blood is taken from me, for whatever reason, i tell the nurse/attendant/whatever that they have ONE shot and that’s it; no do-overs, 2nd chances NOTHING! and no-one ever has a problem….i’ve heard some horror stories about rolling veins and shit…so on Friday, the chick tells me that they are going to take blood and then set up the IV blah blah blah…I say okay and nothing else, she was a bit of a talker so i didn’t want to encourage her; let’s just get this shit started already!  She put on the torniquet, started tapping the vein and feeling around for it, stuck the needle in and NOTHING!  WTF??!?!?  the vein, as she put it, kept running away from her…eh???  really???  and she started poking around, “trying to catch it”…i couldnt believe it…i should have threatened her like everyone else!!!  eventually, she had to ask someone else to do it because she never “caught” it…by this time, i’m thinking i CANNOT do this again, so this one better get it right – she did and we started the process…

My Arm w/all the IV Tubing
I stayed in for the most part this weekend but I have noticed that either my body is trying to get used to this additional medication or something, but it almost seems as if the Tysabri is now negating what the Ampyra was doing.  I’m not dragging my feet but somehow i can’t stay on my feet as long anymore.  UGH!  i called my doctor’s office to talk about that and left a message..so more to come
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