Tag: tropical ms

NOT Talkin Shit

I know i’m not talking shit.

Monday was G’s birthday and we went to our home away from home, EDl.  I couldn’t even bend my knees to get out of the car.  Have u ever tried to get out a car with ur legs as straight as a board?!?!?  NOT cute or ladylike!!!  I felt shame for just a moment when i almost pull down the fella who was helping me out the car! it was some stupid ass temperature like 50 or so…

today it is 70 degrees and i’ve been walking on my own all day!

I understand that it is natural to be stiffer in the cold i s’pose but good grief i am out of control- what the hell do i have to look forward to in December????  I am seriously going into hibernation.

it’s a “tropical strain”; it prefers heat/warmth/sun…

Tropical “Strain”

I am convinced that my strain of MS is tropical and hates the cold weather (0r maybe just Atlanta)!  Went down to Miami this past weekend and not that i didn’t have issues, but i certainly didn’t struggle as much as i do here sometimes.  I’m going to have to move to FL…it’s already been cold a few mornings here – it’s time for me to go into hibernation.

i actually used the cane everywhere i carried it – i’m getting used to it now.  Took it to all the fetes, even took it on the road.  Of course, i can no longer play mas, but K is a good friend of the DJ for one of the bands and arranged for me to be on the (music) truck.  I lasted the entire day on the road – cane and all – and had a blast!

not the truck i was on, but u get the picture
I was actually having 2nd thoughts about going on the road, but i’m really happy that i did, even though i got ah lil emotional when the band crossed the stage.  Not being able to play mas and really enjoy myself in a carnival fete are 2 of the things that REALLY upset me. 
  • We go to a fete and i have to siddong (sit down) most of the time – that SUCKS!
  • We play in a band and i have to ride on the truck and not be on the road – that SUCKS ASS!
but!  I will look on the bright side of things – i can go and enjoy myself in my own way, besides which i don’t think that any of my friends will allow me to stay home!

Tropical "Strain"

I am convinced that my strain of MS is tropical and hates the cold weather (0r maybe just Atlanta)!  Went down to Miami this past weekend and not that i didn’t have issues, but i certainly didn’t struggle as much as i do here sometimes.  I’m going to have to move to FL…it’s already been cold a few mornings here – it’s time for me to go into hibernation.

i actually used the cane everywhere i carried it – i’m getting used to it now.  Took it to all the fetes, even took it on the road.  Of course, i can no longer play mas, but K is a good friend of the DJ for one of the bands and arranged for me to be on the (music) truck.  I lasted the entire day on the road – cane and all – and had a blast!

not the truck i was on, but u get the picture
I was actually having 2nd thoughts about going on the road, but i’m really happy that i did, even though i got ah lil emotional when the band crossed the stage.  Not being able to play mas and really enjoy myself in a carnival fete are 2 of the things that REALLY upset me. 
  • We go to a fete and i have to siddong (sit down) most of the time – that SUCKS!
  • We play in a band and i have to ride on the truck and not be on the road – that SUCKS ASS!
but!  I will look on the bright side of things – i can go and enjoy myself in my own way, besides which i don’t think that any of my friends will allow me to stay home!
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