thanksgiving – Multiple Sclerosis & Me

Happy Turkey Day US Fellas

today is thanksgiving day in the US…for the first time in a long long time, I’m doing nothing. I truly hate this weather and even though one can argue that it’s supposed to be a “nice” day, it’s under 70° and in my book, that’s cold (say what u want bout me). I’m actually waiting patiently to fly to FL in the morning…I wish I could bottle up some of the heat and sunshine while I’m there and bring it back. Steups!!!

anyhoo, yesterday was my MRI. I had to do some rearranging and I couldn’t see Gilbert right after, so I won’t know the results till Dec 19th…in the meantime, I’m hopeful. I still am not experiencing anything new – that’s a lie, the “electric shock down my left leg” that I mentioned before has started back…not as often as before, but it’s happening. One symptom that had stopped after the Lemtrada infusions has also reared its stupid little head but nothing new so that should be an indication of no progression right? Who the hell knows…this is Multiple Sclerosis after all. I thought the MRI was going to last forever cuz I was getting my whole spine AND the brain. Well, it didn’t and I actually was amazed when the tech came and rolled me out the tunnel – I hadn’t even fallen asleep yet! As I was being rolled in though, it occurred to me that I didn’t remember the last time I’d had one done. The machine seemed to be extra loud or maybe my ear plugs weren’t in properly. I’m sure there is a reasonable explanation but I find that for a machine whose one job is taking pictures, it’s too damn loud. It goes thru cycles…sometimes sounding like a jackhammer, a hammer pounding a nail, a door slamming shut…jes crazy shit. Anyway, so 12/19 I’ll go and hear Gilbert’s verdict.

in other news…I made an adult decision earlier this year that I’m beginning to regret. I decided to go home in July for my high school 30 year reunion – absolutely no regrets there. My regret is that I decided to forgo Carnival 2018…whywhywhy did I do that?!? I just opened an email from the Phuket organisers for next year’s fete and well…SIGH!

making this a short and sweet update; not much else going on in these parts.

hol’ it down.

The Holidays

so it’s that time of year…i used to look forward to Thanksgiving and Christmas – i loved them both (doh mind it’s the WORST season of the year) until MS reared its ugly head and i can’t enjoy cooking for thanksgiving or shopping for Christmas! For some reason, both holidays are a HUGE deal in Tucker. We always have a larger than life spread on the table for thanksgiving (u’d swear we grew up celebrating it) and a tree with millions of gifts (most of them for us) under it at Christmas.

well MS has spoiled them both for me. I can’t stand and cook the dishes i have responsibility for and shopping online is just no fun for me! and as usual, i am jealous of all the people out there who have no problems…

this year, i have to find someone’s else’s house to storm for food (no fault of the MS) and we are hopeful that Christmas will find us in Vegas (if that’s not something to look forward to, I don’t know what is) 🙂

My Thanksgiving This Year

it was kinda bitter sweet for me – mostly sweet. On one hand, it was GREAT as usual – G and I always go waaaaaaaaaaaaay out for Thanksgiving – I’m sure that someone out there might say we do too much, but we love it, love doing it, love cooking up a storm and will continue to do so (in fact, last year we didn’t do anything – i went to a friend’s house and it just wasn’t the same). I was off for the entire week, G2 and family were here, both parents were here and then on the day itself others came over to eat and lime. We had a fantastic time!

We don’t ever ask anyone to bring any dishes. We do all the cooking – cept the turkey which we buy from Popeye’s; it’s a cajun deep fried turkey – delicious. Anyhoo, so G likes to cook and so she normally has more dishes to do than i, but somehow this year, i was only responsible for 4.

Here’s where it got bitter – I got thru 1.5 dishes before the MS kicked in and said, “uh uh – ur ass needs to sit down and relax!” I’d been standing for too long i s’pose and i just couldn’t walk or stand up anymore. I prepared the first dish, then had to improvise and continue preparing the 2nd while sitting at the table, rest for a few when that was done and then use a chair by the stove to do the others. In retrospect, i guess it was a good thing that i was only responsible for 4. It sucked! i wasn’t happy about it! i cursed the MS and I cursed it loud! I just couldn’t do my thanksgiving as i was used to – i didn’t appreciate that at all! I’m sure that i knew that it could/would happen, but i still wasn’t totally prepared for it when it did. oh well, wha ah go do (what can i do).

Here’s hoping that everyone had a great thanksgiving with family and friends like i did!

Share this:

Share this:

Share this: