Author: staxone@me.com

I Have MS, It Doesn't Have ME!!

So I mentioned in my last post that the friend came up to me in the cooler fete and told me that he admired me for not allowing the MS to keep me from having a good time.  I’m limin hard, fetin up a storm (partying), driving (again some say like a bat out of hell, i beg to differ) and livin like i don’t have a degenerative, incurable, neurological disease!  my response to that is that I HAVE TO!!!  I’m taking all the bloody pills and shots (WOOHOO, last nite i threw out all the shots i had left; I can barely remember the last time i injected myself; can’t wait for the new treatment to start), exercizing and managing the disease as best as I possibly can but I ABSOLUTELY REFUSE to stop doing shit that makes me happy. 

I’ve mentioned before that driving is the only time that i feel like I’m on level playing field with everyone else…there’s no stiffness, foot dragging, needing to sit, blah blah blah; I feel totally normal.  I’m not going to stop driving jes because something MIGHT happen at some point.  Is that stupid?  some may think so but F*CK IT; I’m not giving it up. 

Sometimes, if someone asks me in shock/horror if I’m doing something/going somewhere alone, I feel a little resentful (i know it’s genuine concern and I really do appreciate it), but somewhere deep inside, i want to say that i’m not trying to be a burden to anyone and there are some things that I CAN/WILL do on my own. 

  • Am i going to go to a fete by myself? NO!
  • Will I go shopping alone? Absolutely – I’m not much of a shopper, but I can spend hours in my favorite store, but as soon as shit starts feeling weird and going wrong, I am out of there!
 I’ve said it before, my hero days are over; i know my limitations…I’m not going to willingly put myself in a situation that I know i won’t be able to handle.

G2's Walk Challenge

Well i was supposed to go to NC and support G2 on the weekend of this walk (big lime (hang out) in NC), but there is a change of plans.  I’m going in for my 1st Tysabri infusion on 6/4, so i’m not making any plans to go out of town that weened.  Instead, I’ll be limin in the infusion center with a needle in my arm! 🙁

I sent her an instant msg (we work at the same place) to say that i wasn’t coming and she exclaimed in horror but then when i told her y, she completely understood – OF COURSE…oh well…next time.  There’s actually one in Atlanta this Saturday.  I’m going – not walking, but I’m heading down there to support K and whomever else shows up to walk it.

G2 is walking in Charlotte this year in the MS Challenge Walk.  It’s a 3 day, 50 mile walk taking place in NC on June 4-6.  Let’s “raleigh” around her and Move It together!!!  BIG LIME IN NC that weekend!!!  Here’s the link to her website:

St. Patrick's Day

okay…a bit late, but better late than never right?

WOOHOO!!!

I was patiently waiting for this day…i was able to eat meat…

5 of us went to out most favorite(ist) place and got down…my orders?

  • PORK Belly
  • LAMB Chops
  • PORK Shoulder
It’s a tappas bar, so the dishes are a 1 serving type deal, but boy did i get my meat on!  Hope everyone wore green and was able to drink their GREEN BEER!!!
Follow Me

Get the latest posts delivered to your mailbox: