U Can't Make this Shit Up

So G stayed with me in the infusion room this time around.  I think i mentioned before that the room is very comfy – recliners, pillows, blankets – u couldn’t ask for more.  So we set up shop next to each other to await the afternoon’s activities.  Well, by the 4th or 5th time of trying to get my blood, the nurse and I had a small conversation that went like this:

Nurse: “ur veins are really tiny…anyone tell u about port?”
Me (so excited): “Port?  that will help?  really?” – in my mind, I was already thinking, hehhehheh, i will need to start taking these days completely off and i’ll drink a glass (or 2) of Port before coming here, so that the blood will flow,  the veins will bulge and getting into them will be a breeze – a valid excuse to knock back a few?

G, next to me, hearing my excitement and putting 2 and 2 together says, “Not Port, jackass!” “A port!!!”  I came crashing back to earth…Apparently the nurse had asked me about “a port” a few minutes before, but i didn’t hear and someone else had walked up and distracted her so the conversation never continued.  G heard when she’d asked the 1st time so realized that it was some kinda apparatus or something that she was talking about.

Anyway, in a nutshell, a port is a small device that is inserted and remains right beneath the skin.  A catheter connects the port to a vein and blood can be drawn from/drugs administered in the device as needed, with less discomfort for the patient than a typical “needle stick”.  In other words, it’s a “sure thing” and would be used every time i go for an infusion.  No more, “guess how many times i’ll be stuck today” or “veins not wanting to “come out and play”” or any of that usual bullshit.

The nurses suggest that i think about it because my veins give so much trouble. Food for thought…

Infusion Time "Fun"

Anyone want to take a wild guess as to how many times i was stuck last Friday?

anyhoo…so i went on Friday for my 6th (time flies when u’re having fun) infusion.   The head nurse (andrea) walks over and starts trying to get my vein to corporate (applying heat, tapping it, flicking it).  It looks like it’s going to be a good day but then she goes in and… has no luck….the vein is just not on this infusion business and has better things to do i s’pose.  She calls over someone else…she nails it!  woohoo!!  we are on a roll here.  This time because it’s my 6th one, they need 3 vials of blood for whatever blood work they have to do.  The chick says that she’ll wait to get blood after i’ve gotten the medication. (skip ahead 2 hrs)

Andrea walks over and says, “lets get some blood and send u on ur way.”  She takes the syringe and whatever other apparatus they use and inserts it into the IV, pulls back on the plunger and – NOTHING!!  She thinks that the vein that we’re in is kinda tiny, so she’ll have to go in somewhere else. (skip ahead 45 mins)

By this time, both my wrists and forearms are sore and 2 other nurses have seen me.  Remember i said that they needed 3 vials of blood?  they got 3/4 vial!!!!  My blood just didn’t feel like flowing.  At the end of it all, Andrea said that they will just take it and do whatever testing they could with what they had.  I was so happy to hear her say that because i really wasn’t in the mood to try yet another time.

so…at the end of it all, how many times did i actually get stuck?  7!!  twice for the medication and 5x for the 3/4 vial of blood – sooooo NOT what I signed up for!

Tropical "Strain"

I am convinced that my strain of MS is tropical and hates the cold weather (0r maybe just Atlanta)!  Went down to Miami this past weekend and not that i didn’t have issues, but i certainly didn’t struggle as much as i do here sometimes.  I’m going to have to move to FL…it’s already been cold a few mornings here – it’s time for me to go into hibernation.

i actually used the cane everywhere i carried it – i’m getting used to it now.  Took it to all the fetes, even took it on the road.  Of course, i can no longer play mas, but K is a good friend of the DJ for one of the bands and arranged for me to be on the (music) truck.  I lasted the entire day on the road – cane and all – and had a blast!

not the truck i was on, but u get the picture
I was actually having 2nd thoughts about going on the road, but i’m really happy that i did, even though i got ah lil emotional when the band crossed the stage.  Not being able to play mas and really enjoy myself in a carnival fete are 2 of the things that REALLY upset me. 
  • We go to a fete and i have to siddong (sit down) most of the time – that SUCKS!
  • We play in a band and i have to ride on the truck and not be on the road – that SUCKS ASS!
but!  I will look on the bright side of things – i can go and enjoy myself in my own way, besides which i don’t think that any of my friends will allow me to stay home!

Today's Post Brought To U By The Number "1"

well wouldn’t u know it…

Friday was my infusion (time really does fly) and guess how many times i got stuck?  ONE!!!!  she did it in 1 go…who woulda THUNK it!  I certainly didn’t think it was possible after all my experiences so far.  AND, i think i’ve also discovered the most comfortable position too.  I think i’ve mentioned before, i would have never thought in a million years that i would entertain the top of my wrist (that nice bony part) – but there is the most comfortable – i can bend, move my hand freely without any issues.  I sit there for about 2 – 2.5 hrs easily so it’s good to be able to move my arm comfortably.
Still don’t know what, if anything, these needle pricks are doing anything for me – but hey, i guess i’ll keep enduring them for now.

My "Condition"

i hate when people automatically assume that because i say i can’t do something or I won’t that it’s because “of your condition”.  i was talking to my aunt last nite and we were talking about long distance driving.  I said that the only place i drive to is Charlotte because it’s only 3 1/2 hrs away and even that is a stretch.  she said, “yes yes…in ur condition blah blah blah”.  she’s not the first one with whom I’ve had this exact conversation to say this.  The other person kept insisting that i shouldn’t do it blah blah blah…the truth is that i don’t drive anywhere because i can’t stand to sit in a car for that length of time!  I too old for that shit!!  back in the day, we would jump in a car and drive to NY and Miami at the drop of a hat….u cyah pay me enuf to do that crap NO MORE…everywhere i go, i fly!

Now don’t get me wrong.  I know that there are some things that i shouldn’t/wouldn’t do “in my condition” – u won’t hear of me signing up for a 10K anytime soon – but i know what those are and i know my limitations.  There was a time ago when i said “to hell with it; I’m doing it” but those days are long gone.  My “superhero” days are over!

Follow Me

Get the latest posts delivered to your mailbox: