Author: staxone@me.com

Y Can't that B Me II

i am envious when I see people exercising!  

Again, who woulda thunk it!?!?  Anyone who knows me, knows just how much i used to HATE the gym and NEVER really looked forward to working out.  In fact, when i was dancing, i was happiest because that alone is a workout and because i was having a good time doing it, i never really thought of dance as a workout per se.

Even when my neuro told me (years ago) that exercise is important while managing MS, i still needed some type of motivation and couldn’t get it together to get started on some sort of regular program.  At some point, i realized that the only thing that would get me going and keep at it consistently was to hire a personal trainer.

These days, I’ve actually gotten to a point where i like working out with Reggie (*gasp*, did i just say that out loud???).  I go to a small gym, not a Golds, Ballys type place.  There are about 4 or 5 studios in which the trainer and the client workout together one on one.  The studios are only used by 1 client at a time, so u really have the trainer’s undivided attention for the time that you’re there.  Even though the place is used/setup like that, sometimes u can see what others might be doing if u’re there at the same time.  While i do get my money’s worth, I have limitations so there’s a whole lotta shit that i can’t do.  well, when i see other people doing such things, i look at them and again think, “*sigh*, wish i could do that!”  of course, some of the exercises, i could try…but then i’d probably spend the entire 45 mins just to do 1 rep!!!  (may not be a good idea. SO not a good use of my money).

*sigh*

just another 1 of those things…

*sigh* Now Y Can't that B Me

it’s amazing how things happen/change in ur life and it takes on new meaning/you gain new perspectives.

I’ve been going for infusions for a almost a year and a half now and every time i go, it’s a fight with my veins.  In my wildest dreams, i never thought that would be an issue because every time i went to give blood prior to my starting the infusions, i never had any problems.

In light of all that, these days when i see someone with nice bulging veins i look at them with pure envy!  i saw a fella in the barber shop on Saturday and I swear his veins were a big as a drinking straw!!  I always think, “now y couldn’t that be me”???  I know that i don’t know everyone’s situation…but i always think, “what a waste of a nice vein…bet u don’t have to go for an infusion every 4 weeks!”

Apart from the obvious, guess which hand is mine!

I think i have good ones in my feet, but alas they won’t use the foot.  so i just have to look and lust after the big veins when i see them.   Who woulda thunk that there would come a time when i would look at people and the 1st thing i notice about them is the size of their VEINS!!!

Dr.'s Visit

It’s been a while….i was on vacation last week – and what a great vacation it was!

anyhoo…so i went to my neuro yesterday for a regular follow up and nothing really to report.  he confirmed that the MRI shows no progression (good news), he was disappointed that i haven’t seen any improvement in my gait from the Tysabri (bad news).  Also, the last time i was in to see him he said that they would draw blood to test for the the presence of the antibodies that causes the brain infection – well they never did that.  I assumed that 1 of the vials drawn during 1 of my infusions was for it.  I was wrong…so that test still needs to be done during my next infusion and i’ll get the results beginning of October.

At that point, if the antibodies are present, i will be at higher risk for developing the infection and decisions will need to be made about whether to continue and tempt fate or discontinue and go on something else – decisions, decisions (as if it weren’t bad enuf that i had to decide if i even wanted to start on Tysabri in the 1st place). If no antibodies present, i’m in good shape and can continue on Tysabri.

He asked me if it’s working and i had to be honest and tell him that i had no clue.  I suppose it’s working because i have no additional lesions on my brain or spine and no exacerbations recently, but other than that, i can’t be sure.   I was hoping for a walking improvement – so many people say great things about Tysabri, “it’s the most aggressive drug on the market…blah blah blah”, but if you ask me, it’s on the same level as all the other drugs available – oh well...wha yuh go do?

"You are a Nightmare"

That’s what the nurse who told me about the port said to me last week Friday.  LOL!!!  She’s an IV nurse; she normally gets it on her first try, but someone else usually has to call her over…Friday, they had to get 4 vials of blood for all the tests to be performed and as usual, the “molasses that flows thru my veins” had to be coaxed out –

  • i had to let my hand hang naturally
  • the needle had to be pushed in and drawn out (not all the way) a few times,

…and after all that, she didn’t even get 3 full vials!  Steups!  By this time, the 1st chick was fed up (she knew i was also in pain), so she called over the IV nurse and as she walked over, she looked at me, sighed and said, “u really are a nightmare”.  Of course that sparked ah set of jokes about their groaning on the Friday that they see me walk in, “oh geez, here comes Stacey – lemme pretend to be busy, someone else will get to her” etc. etc…

LOL!!  Who knew that the infusions could have turned out to be happy happy times 🙂

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