was one of those “sorry for myself” kinda days – i think it’s okay; i’m entitled every now and again, aren’t I? I won’t get into the gory details – it didn’t last too long, but it is what it is!
Today…
Author: Stax
Countdown is On!
the countdown to visiting my doctor to getting a prescription for the new drug – they say it will be available in March (no date – i figure i’ll go to him sometime in the middle of the month)…i wonder if he’ll agree with me that i am a good candidate for the drug. Will he “fight” me with my decision to go on it? Isn’t it ultimately my decision?
I’ve learned that the drug will a little over $1000 for a 30day supply!! Whoa! How much of that will my insurance cover? UGH! The good news is that my current medication (the lovable daily shot!) cost more than that as far as i know, so maybe $1k is small change and the insurance company will gimme a break..
Will the damn thing even work??!?!?!
Right now i have more questions than answers…hopefully these questions will be answered during the next month or so, but until then – fingers, toes, eyes, legs r all crossed and I’m hoping for the best.
MS Awareness Week
okay…i know that this is early, but i letting allyuh know from now so that u can plan ahead (wear orange – that’s our colour)! 🙂
MS Awareness Week is March 8-14 2010. For those in the Atlanta area, the MS Society, GA Chapter is having a “Move It” party on 3/11 (thursday) from 6-8pm…
“MS Awareness Week 2010 marks the Society’s fifth annual coordinated MS Awareness Week efforts. In past years our call to action around the week has encouraged people to Join the Movement. This year, we will build on the groundswell of the MS movement that continues to gain momentum, not only during MS Awareness Week but every day”.
Goal:
“The goal of MS Awareness Week is to acknowledge people who are a part of the movement, invite new people to join the movement, and encourage everyone to “move it” during MS Awareness Week to take at least one action to demonstrate their commitment to a world free of MS.”
So join us as we “Move It” in 2010 and beyond!
’tis the Season to be Happy!
well…it’s carnival time at home*sigh*…i eh go lie, it’s the one time of year that i STILL feel homesick even after ALL these years! I’m sitting here listening to Red FM (online radio station) and am absolutely gettin the fever. I’ve mentioned in an earlier post that i can’t/won’t go home while I am still having problems walking – it’ll be even more depressing than being here freezin my ass off and knowing the kinda bacchanal (fetin/good good times) and going on home in the HOT SUN!!!
One of the things i absolutely love about carnival is how it brings the entire country together. Man, woman, child, black, white, indian, young, old – everybody limin and having a good time. For the season, is jes happiness and then on the 2 days itself, NO-ONE has any worries cept gettin to the band on time to push off.
To everyone who went home, take a jook, wine and a drink for me…i know there will be much PALANCIN goin on – truth be told, i eh bong to hear bout it when u reach back 🙂
these are just a few pics from last year…
“Learning” to Breathe
so at the wellness workshop last week, they taught us to use a breathing (diaghramatic breathing – deep breathing flexing your diaghram not ur rib cage) and progressive muscle relaxation techniques to help deal with stress and fatigue, among other symptoms. Who knew we would learn how to breathe??? At the beginning of the workshop, we were given a CD (Time for Healing, Relaxation for Mind and Body), but didn’t find out exactly what it was for until last week.
The progressive muscle relaxation starts with your feet (tensing the muscles and completely relaxing them) and ends with the muscles in my face. While i wasn’t as skeptical as I can be about things, such as this, i have to admit that it has me sleeping ah lil better and feelin less stiff. I copied the CD onto my phone and every nite when i hit the bed, i go through the entire exercise (it lasts 20-30 mins) coupled with the breathing technique. Tensing the muscles was extremely uncomfortable at first because u have to tense up and hold for a few, but it is getting better with each one. (Try tensing – really tensing – ur facial muscles for 30 secs or so…it’s a RATHER uncomfortable feeling)
Anyway, after these past few weeks at work (things have slowed down for now, but i am not completely over the hump as yet), this is exactly what the the doctor ordered for me.
A picture of total relaxation right here…