Now what is it about when I fall that I immediately start to laugh hysterically (even if i’m alone)!!! Maybe that’s my way of dealing with any embarrassment, maybe it’s because I am able to laugh at myself – who knows – but i fell and immediately started laughing HARD! I have a friend staying with me these days, he must think that I am a mad woman because every single time (of course I’ve fallen at home before) i fall, i laugh like crazy. This time i was laughing so hard that he actually helped me up because it was obvious that i couldn’t help myself too much at the time. UGH – f*ckin Multiple Sclerosis!!!
Author: Stax
May 26, 2010 is World MS Day
My 1st Drink…
I Have MS, It Doesn’t Have ME!!
So I mentioned in my last post that the friend came up to me in the cooler fete and told me that he admired me for not allowing the MS to keep me from having a good time. I’m limin hard, fetin up a storm (partying), driving (again some say like a bat out of hell, i beg to differ) and livin like i don’t have a degenerative, incurable, neurological disease! my response to that is that I HAVE TO!!! I’m taking all the bloody pills and shots (WOOHOO, last nite i threw out all the shots i had left; I can barely remember the last time i injected myself; can’t wait for the new treatment to start), exercizing and managing the disease as best as I possibly can but I ABSOLUTELY REFUSE to stop doing shit that makes me happy.
Sometimes, if someone asks me in shock/horror if I’m doing something/going somewhere alone, I feel a little resentful (i know it’s genuine concern and I really do appreciate it), but somewhere deep inside, i want to say that i’m not trying to be a burden to anyone and there are some things that I CAN/WILL do on my own.
- Am i going to go to a fete by myself? NO!
- Will I go shopping alone? Absolutely – I’m not much of a shopper, but I can spend hours in my favorite store, but as soon as shit starts feeling weird and going wrong, I am out of there!
Cooler Fete
So I mentioned that cooler fete (party where u pay to go in but u don’t buy drinks (altho there is a bar) because u walk with a cooler(any size; I’ve seen refrigerators converted to coolers) filled with drinks) was this past weekend.
As usual, we packed up our cooler with everyone’s poison of choice (Kaliber for me – YEA!), threw my chair in the trunk and proceeded to have ah time – we didn’t leave till 6:30 the next morning, so I think it’s safe to say that we had a great time! J, who has not seen me since December, told me TWICE that he was totally amazed AND impressed by this new medication. I didn’t use the chair half as much as i used to and when i did, i only used it because i didn’t want to chance not being able to walk out NOT because i had to.
Spoke to K this afternoon. She’d been watching me all nite and was also impressed with how long i was able to stand, able to take ah lil wine here and there, walk in and out of the venue without assistance and lime lil bit outside when we were leaving :-). Even G said that it was most obvious Saturday nite, just how well the Ampyra is working.
At some point, i was sitting and a friend, who is new to the lime, came over and said that he admires me because I don’t let anything stop me…i’m out there having a good time inspite of the MS and I just make adjustments because i know my limitations. He absolutely loves my attitude about everything. I’ve mentioned before how Trinis find humour in everything; another friend said to me, “want to take this outside? Ah go (I will) take ur chair from u, leh we (let’s) see just how gansta u are then!”
Ahhh…happy times! 🙂