Author: Stax

Routines

Part of managing my MS is all about routines – and I suspect that goes for all chronic diseases.  Altering old ones, creating new ones and even *gasp* deleting some old ones…

  • Eating breakfast – won’t bore u with details but I’ve had to change my morning routine before heading downstairs to work
  • Getting ready to go somewhere – again, no details necessary, but i’ve had to alter my “getting ready” routine
  • Setting alarms to take meds – everyone always knows when it’s 5pm and 9pm on a weekend now
  • Waking up at 1 am to take a pill – every morning, the alarm goes off; it’s gotten to a point that sometimes if I’m asleep before that, i actually wake up without the alarm.  Luckily they’re small enuf that i don’t take them with water – 1 time i swore that i’d taken them; i felt them go down and the next morning i woke up and they were in the container smiling up at me
  • Partying on the sidelines – i doh fete like i used to (jes a whole lotta limin) but when i do,  i usually shy away from the wine and enjoy the music more than anything (love to hear music LOUD) and live vicariously thru everyone else
  • Walking around with a chair – never know where we might end up and there is no seating for me 
  • For the first 5 years, i had to figure out the best time to take my daily shot so that i wouldn’t forget altho up till the time i stopped, i still kept forgetting…good thing i have to go in for the infusion
it’s really about knowing my limitations/what I can and cannot do, altering some things to not put myself at risk…and if I try to do something that I know I shouldn’t, being prepared to deal with any consequences.

Taking the Plunge

allright…i give up!  I’m not going to fight it anymore…I’m throwing in the towel, biting the bullet – all of those phrases…

i’m 99.9999% sure that I’ll get the cane. I think i need to practise for sure because even tho i’m that close to getting it, i’m not that close to being convinced that i’ll be able to maneuver IT and ME all at once.

Using 1 will be better than falling more regularly than i do now and hurting myself.

D, I’ll work on the pimp cup (just for u) – can’t make any promises re: the cadillac :-)…i know u wish u were here to see for urself!

Cane…Food for Thought

So when i went for my infusion, 1 of the nurses saw me and asked me where was my cane.  She seemed to remember me coming in with a cane before.  When i told her that I didn’t use one, she said that maybe i should look into it because it would help me keep my balance.  what’s “funny” is that i’d written about my thoughts of using one the day before and then i go in and she’s telling me that it will help me.  I’m still not convinced – i’m still a little afraid.  I’m thinking it’s one more thing that I’ll have to “keep track of” when i’m walking and that could end in disaster.  maybe it’s also my pride?  maybe it’s that i’m scared because again – the progression – canes might lead to other walking aides which could eventually lead to a permanent chair.  Of course there’s always the bright side…i could get a “cool” cane; maybe different colours and styles so that i have options depending on where i’m going…

i swear it’s getting harder and harder to keep my positive attitude about this disease. 

The New Drug

Oye!

Not sure if i have figured out the last pill as yet. 

  • Sometimes it makes me sleepy (altho not as much as the first time) other times – nothing
  • the past 2 days, it’s been making me dizzy (only for a few minutes), before yesterday – nothing
  • Once or twice, it made me feel kinda sick (again only for a few minutes) – but that’s only been once or twice


Sheeeiit – i just don’t know.  As usual, is it helping?  who the *^*!! knows.  i thought it was at first; now? not so much.  i was supposed to take 1/2 a tablet for a week (started 2 weeks ago) and then increase to a whole one.  Needless to say i’m still taking 1/2 because I’m a little afraid of what an entire 1 would do..more to come i suppose…

Today’s Post Brought To U By The Number “1”

well wouldn’t u know it…

Friday was my infusion (time really does fly) and guess how many times i got stuck?  ONE!!!!  she did it in 1 go…who woulda THUNK it!  I certainly didn’t think it was possible after all my experiences so far.  AND, i think i’ve also discovered the most comfortable position too.  I think i’ve mentioned before, i would have never thought in a million years that i would entertain the top of my wrist (that nice bony part) – but there is the most comfortable – i can bend, move my hand freely without any issues.  I sit there for about 2 – 2.5 hrs easily so it’s good to be able to move my arm comfortably.
Still don’t know what, if anything, these needle pricks are doing anything for me – but hey, i guess i’ll keep enduring them for now.
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