Author: Stax

Tropical “Strain”

I am convinced that my strain of MS is tropical and hates the cold weather (0r maybe just Atlanta)!  Went down to Miami this past weekend and not that i didn’t have issues, but i certainly didn’t struggle as much as i do here sometimes.  I’m going to have to move to FL…it’s already been cold a few mornings here – it’s time for me to go into hibernation.

i actually used the cane everywhere i carried it – i’m getting used to it now.  Took it to all the fetes, even took it on the road.  Of course, i can no longer play mas, but K is a good friend of the DJ for one of the bands and arranged for me to be on the (music) truck.  I lasted the entire day on the road – cane and all – and had a blast!

not the truck i was on, but u get the picture
I was actually having 2nd thoughts about going on the road, but i’m really happy that i did, even though i got ah lil emotional when the band crossed the stage.  Not being able to play mas and really enjoy myself in a carnival fete are 2 of the things that REALLY upset me. 
  • We go to a fete and i have to siddong (sit down) most of the time – that SUCKS!
  • We play in a band and i have to ride on the truck and not be on the road – that SUCKS ASS!
but!  I will look on the bright side of things – i can go and enjoy myself in my own way, besides which i don’t think that any of my friends will allow me to stay home!

Ramblings…Post about Nothing

Most times when I go for my infusion, i see the same people.  That only makes sense since it’s supposed to be done every 4 weeks; so we are all on the same schedule.  Every so often tho, I will see a new person or 2.  So this last time (once again only stuck once – WOOHOO!) there were a few people who actually walked/looked like they were suffering from the same symptoms (y do i ALWYAS have to use spell check with this word) as me.  They say that misery loves company, and i am really beginning to totally understand how true that really is.  of course, on the flip side, there was also a woman in a chair…oye!  Now this woman had been there from 11-2:30 because they were “trying to get a good vein”.  They eventually had to send her home to come back some other time (didn’t macco (be nosy) well enuf to know when) because after 8tries (and letting her rest in between) they gave up…WTF!!!  hopefully i’ll never have that experience.

i was looking at my feet the other day and it dawned on me that the veins there look perfect (to my trained by the internet eye).  Don’t know if i’ll ever muster the strength to go there (is that normal) but they appear to be bigger and more prominent than those in my arms/wrists.

The nurse who’d spoken to me about using a cane at the infusion center was so very excited and proud of me because i had actually gotten 1.  She noticed it right away and told me that i’d made a good choice and i won’t regret it.

True Story

Saturday i had to take my car in to Honda.  I got there and the Honda man opened my door.  I told him my usual, “I’ll take a moment” because in addition to just taking my time to get out the car, I was juggling a book, a cup of coffee, the cane, my phone and my handbag.

He said, “no problem…take ur time.  Would u like me to hold something for u?”…i said, “oh yes, thank u”…

 and handed him the cane!!

Not Sold

So…I’m still not sold on this cane.  I’m giving it a chance, but…

yesterday I had to pick up my car from the repair shop – how the fcuk do u see a parked car that is sitting in a practically empty parking lot and then reverse into it?????  that is just beyond my realm of imagination…but as usual i digress – so i went to get the car, took the cane and what did i do?  held it in my hand instead of actually using it!  HELLO!  I’m a loser, yes i know.

  • I get that it will help with my balance – i think.  What if i have it in my right hand and i start to sway to my left?  what then?
  • I’m not sure that it will help me when i’m stiff – can it really help me then?
  • what about when my knees decide to lock up – to me that is just more drama

I’m still being positive…I am not going to write it off.  I just have to get into the habit of picking it up and actually using it i s’pose and we’ll see what happens.

It’s a nice sleek one…it’s not fancy; didnt want to spend too much money on it until i know it’ll actually be worth it, but it’s cool enuf that i won’t mind walking around with it. 

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