Author: Stax

good grief!

have i ever mentioned that i hate having ms?  i do!!

so i got some new boots.  they are cool and they are tall boots with no zip so i have to pull them on and off as i go.  This morning i had an appointment with the devil (my dentist); i put on the boots and off i went.  i got back home and needed to take them off so i could walk around with ease in the house.

i’m not sure if i ever mentioned before but the left side of my body is my probelm side.  Everything always happens on the left side

  • the first sign that prompted me to go to a doctor that eventually led to my diagnosis was twitching of my left eyebrow
  •  the vision of my left eye was off 2 years prior to my diagnosis, 
  • my left foot would drag more etc etc – 

and in general, it’s weaker than my right.  Well i go to pull off the right boot with my left hand this morning and NOTHING.  the blasted boot would not budge.  Try as I might, I couldn’t, for the life of me, find the strength to pull off the boot.  WTF????  i’m heading out later – i had visions of having to keep the bloody thing on until i returned and then ask my friend to pull it off for me before i go in the house.

well my persistence finally paid off; i was so determined to get the shit off – someone from my past always used to say “persistence is the key” I finally i was able to get it off and pelt it way.

Did i ever mention that i hate having MS???  i DO!!!!

Ah Shit!

Wednesday was not a good day.

i actually had a few thoughts of “if I continue to walk like this, I’m not going anywhere anymore”… it was really not good.  I even decided that maybe i need to contact my neuro and go back on that other drowsy medication 3x a day and was trying to figure out how i could take it without it’s interfering with my life too much.

Anways, in the midst of my wallowing my alarm went off at 4pm – it was time to take my afternoon sets of pills.   I opened my handy dandy “Wednesday” container and what greeted me?  every single pill that i was about to take as well as those that i was supposed to take at 8 AM!  ugh!!!!  is this y i was having such a hard day again??  i remember it’d happened before…i took the 4:00 dose and went on about my business.

Later that nite, at 8pm, the alarm went off yet again for that round.  I took out the container and what did i find?  i’d taken the 8:00 tablet at 4!!!  WDF????  where was my mind yesterday?  i guess in my confusion about realizing that I hadn’t taken the morning pills, i didn’t really think about what i was doing at 4???  who the hell knows!

well….it was too late by then to do anything about it and I had to just chalk up Wednesday as a lost cause and move right the hell along to Thursday

Side Effects Again

I don’t think I will ever stop talking about side effects!  lol…

so for a long time i’ve been feeling a tickling sensation in my throat and each time it happens i have to cough to try to get past it.  it wasn’t really making sense to me why it was happening and just out of the blue for no reason, but hey, i just chalked it up as 1 of those mysteries of life.  G kept saying that it was the damn MS doing something but this time i actually wasn’t convinced.

1 of the tablets i take is mailed to me and it always comes packaged with the drug facts and information etc.  They say u should read it each time and i do for the most part but never really put 2 and 2 together until a couple months ago.

One of the side effects is:

irritation in your nose and throat!
well hell!  that must be it then…it’s really odd, it’s not painful but it feels like a small piece of hard plastic just stuck there and i have to cough to get rid of it.  Doesn’t happen a whole lot, but of course, it’s good to finally have an explanation.

Smuggler’s Cane

I used it yesterday/last nite…not in its entirety – there was nothing in the flask; i was going to a restaurant – but using it is more work than the others because of the “handle” or lack thereof.  Before G2 bought it we discussed my being able to use the cane because of its handle and we figured that if I couldn’t use it she would try to change it.  All the canes i’ve used have a “L shaped” top; this one has a knob (there are actually proper names for the different handle tops, but i won’t bore u with those details).

We figured, correctly so, that it certainly would be a different experience.  It was – it’s much more work.  I guess i never realized just how much i rely on that little “handle” part of the other canes, but i do…i won’t go as far as to say that i can’t use it, but i actually have to be conscious of the fact that i have to lift it off the ground.  I don’t drag the others (i don’t think) but if I don’t lift this one up entirely it will fall flat and we definitely don’t want that to happen…
suppose the flask inside doesn’t survive – GASP!!!

      

geez!

I’m so tired of this cold weather and snow and ice and…but

I eh go lie, living in Atlanta is not too bad; it has its perks…5 inches of snow and the city has been shut down since Monday.  Of course I can’t take advantage of this snow week because I work from home, so things are just normal for me.  I havent left this house since Saturday and I can’t imagine that i will until Friday.  Have to go to my infusion (WOOHOO!!!) , but will probably need to leave now to get there on time (what with all the closed interstates, accidents, people who cyah drive in rain – far less for snow)

I’m seriously thinking of celebrating my birthday in May instead of now.  Accept all birthday wishes on Jan. 10th, but celebrate in warmer temperatures.  This is the 2nd year in a row that Ive had to cancel plans because Mother Nature had other plans for me – but things could be worse; i certainly am not complaining…I’m just saying…

anyhoo, hope everyone out there (in the US) is safe in this awful weather and keeping warm – Stax out!

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