Author: Stax

oh boy…

today is the day that i should find out the results of my JVC virus antibodies test.  that’s the virus that causes the brain infection when u’re on Tysabri.  The virus is in all of us, but it’s dormant – Tysabri wakes it up! (of course).  anyhow,

  • if the test is positive and the antibodies are present, more decisions will need to be made…do i stay on Tysabri with a greater chance of developing the brain infection?  they will monitor me by doing an MRI every 3 months instead of 6…do i switch to yet another disease modifying drug? 
  • if the test is negative, life goes on as usual.

of course, me being me, i have a feeling that the test is positive.  I can’t help it sometimes, i tend to expect the worst and be pleasantly surprised when things work out well.

oh well…stay tuned!

I misspoke! It’s the JCV or JC Virus…

Stacey Strikes Again

I love yoga!  unfortunately, it falls into that category of “things i can’t really do properly anymore” so i have to find alternatives.  Well i found out about something called adaptive yoga (it’s amazing how much i know exists out there now that i’m in the situation i’m in).  it’s also referred to as Therapeutic Yoga and is essentially, yoga practice that’s adapted to people with injuries, disabilities etc so it may be practised in chairs, with props – u get the idea.

So finally found a class that takes place after hours so i can attend and went to the 1st class last week Tuesday.  It was a good class and i’ll keep going (besides which it’s free so u can’t beat that with a bat!)  For those who’ve never practised yoga before, the atmosphere is always very quiet, serene, peaceful, relaxing (all those kind of words).  At the very end of the class, the instructor will get u into a zen-like  place and u take deep breaths for a while before the class is dismissed.

so on Tuesday we are in this zen-like place, taking deep breaths innnnnnn and oooouuuut, innnnn and oooouuuut and then BRAP, BRAP, BRAP, BRAP, here comes my (noise pollution) alarm.  It was 8:00 – time for my medication!  Imagine my horror (altho i couldn’t help laugh to myself)

Of course, my phone was in my handbag, so i had to dig for it and take it out, so it only got louder and more obnoxious!  Did i mention that it was a small room with about 8 students????

Ahhh….more happy times!

FL Stories

So like i said, went down to Miami last week Wednesday and had a whale of a time…partied like it was 1999 and just plain ole had a time.  I didn’t go to all the fetes that the crew went to just because i didn’t want to chance anything/push my luck, altho truth be told, i did so well, i think i may have been ok.

Allowances were also made for me on some occasions, because we knew some of the promoters and were allowed special access/privileges.  On Thursday nite, K and I were the 1st 2 patrons on the boat – i was allowed to go on before the masses – quite cool.  so we went to a party on the Friday nite and there were some steep steps to enter.  we asked for an elevator and found out that it was on the other side of the building, so it was decided that S and J would carry me up the steps just to make it easier for me.  I probably did half and half that nite (1/2 the time sitting and 1/2 the time on my feet)…it was a free drinks party and we were quite close to the bar, but all nite long, i was brought drinks, so i didn’t have to walk back and forth.   At some point in the nite, i was sitting and someone came up to me and said, “U had a special ticket?  everyday bringing drinks for u all nite long!”  i laughed and went on with my nite…at the end, AC took me down the steps on his own.  Overheard by A on her way down, “buh who d hell is that?  they take her up in the party, they bring her down from the party and bringing her drinks all nite!”  A snickered and continued on her way.  HAHAHA!!

Everyone went to a Saturday breakfast fete after Friday nite’s bash but good thing i didn’t go to that because i heard that they had to stand in line for 2 hrs before they got in.

I was the last one to get on the boat on Saturday – after all the masses but that was also good because i didn’t have to deal with any crowd or drama.  Now while on the boat, even though i was standing the whole time, best believe that i was holding on to a railing…i wasnt trying to tempt faith by standing up in the middle while the boat was sailing – that’s for damn sure.  LOL!!  We didn’t do the parade this year and so that was the end of any big events.  there were 2 house limes Sunday and Monday so there was no issue then.

All in all, i really had a good time down there (as usual) and can’t wait until next year already 🙂

will put up a few pictures later on…

My oh My

Came back yesterday from Miami carnival…it’s very fitting that my last post was about how well i walk/am when i’m off or on the weekends.  I was so good in Miami!!!! for the entire week that i was there!

  • went on 2 boatrides and stood up “wining (okay as best i could)” for the duration (at least 4 hrs) of both and then was able to walk off the boats (albeit a little slower than normal – if that is even possible 🙂 ) after them both
  • walked around all day (some of the days) and still went out later the nite, without too much issue
This morning i wake up to get ready for work and…whoa!  what the heck?  is this the same person???  geezanages.  can a gal get a break?

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