Author: Stax

BG12 is now referred to as Tecfidera.  As i mentioned before, i go for my “juicing up” on Friday and even though i won’t see my doctor, i’ll either see A doctor or a nurse practitioner so i’m definitely going to get as much info as i can from them and if possible start the ball rolling.  a complete blood count must be done prior to starting, so i’ll suggest to whomever i talk to that they might as well order it.

My findings:

• there’s no waiting period after stopping the last therapy before starting it…that’s good.  that way i can start it sooner rather than later because the Tysabri won’t have to be out of my system
• there is a $10 copay program.  the site states that there is no income requirement, no time limit and no waiting (enrollment can happen as soon as you go on it); this is good news…hopefully alot of people can take advantage of this
• moderate level of alcohol has no effect on it or it’s workings.  WOOHOO!! it’s no secret that i enjoy beverages of the alcoholic kind  the day that i am told that i can no longer drink is the day that this shit will become unbearable.  the question of how the drug will interact with the alcohol is MOST important – i don’t care, it is what it is

so my recent “happenings”…my right thumb moves on its own.  just a small movement, like a (continuous) flicking motion (about 2 mm or so).  last week when i started noticing it, it actually happened all day long from that moment.  it’s also quick movements too…it’s annoying but nothing else.  actually, honestly it isn’t happening as much anymore.  is it the MS?  hell if i know, but it insist on hanging around, so it’s getting blamed!  it’s extremely annoying when i play this game on my phone because i would position my thumb where i want a ball/thing to drop and then my thumb jerks and the thing goes where i don’t want it to go – steups!

One of the reasons that i stopped writing for those couple months too is that i got tired of writing about being sick and falling!  remember i said at the beginning of 2012 that i would keep up with my falls?  well i did and it actually was 12 – i think…i’m almost sure it was 12 (ugh! great!  1 a month).  i was doing rhell good this year, for the most part, and then fell twice last weekend.  so far for this year it’s been 3 but i can honestly say that i can only blame the MS for 1 – the other times, i was doing shit that i should not have, altho maybe without the MS, i woulda been able to “catch myself”?  i’m not keeping up this year (it could get depressing after a while) but it has been 3 (off to a bang up start).

i go in for infusion #38 next week; i plan for that to be my last – WOOHOO!!  i won’t be able to start the ball rolling to go on BG12 (it actually has a new name now) i don’t think because i won’t actually see my doctor but i should be able to get all my questions answered so that i can hit the ground running when i do see him in May.  We’ve already spoken about it too so I expect no surprises/push back/pressha from him; he actually wants me to switch.

anyhoo, ah gone so…have a great weekend everyone!

so my left side, for whatever reason, is the more MS afflicted side.

• i drag my left leg, it’s always the stiffer one, it’s the one that i have more trouble to lift (say to get into a car amongst other things).
• My left hand is the one that likes to curl up and give me shit to open. 

nothing really going on with the right arm or leg.  

I’m not sure if i mentioned that my last trainer decided to ups and leave GA and move to NY, so at the end of the year last year i was desperately looking for a new trainer – almost reaching panic stage because:

1.  that arthritis (?) ad kept playing in my head, “a body in motion, stays in motion while a body at rest, stays at rest – they are trying to encourage people with arthritis to stay active and get on some pill – and i really want to stay in motion
2. will i be able to afford a new trainer???  i was getting a friends and family deal with Rhonnel!  

well, say what you want about Facebook, it’s good for some things, i finally got a trainer who i could afford.  So i s’pose everybody does things their way and would you believe that i’ve discovered, working out with her, that my LEFT side is actually stronger than my RIGHT?!?!  who woulda thunk it? certainly not me!  wow!

 

ah gone so…hol it dong…

Trinis are very proud of where we’re from and who we are as a people.

Here in Atlanta, the ones who are in constant contact with each other support one another as much as we can and it’s always like that, for the most part.  as a result, this year i was thinking, “hmmm…wonder if there’s a way to get my shirts for the walk from home/support a business at home this year”.  the wheels started turning and i did just that; found a way to connect at home to get them straight from Trinidad.  in the middle of the planning/trying to make it work, I got an email from B (who lives at home) asking me if i’d gotten T-Shirts for the walk this year already and if i had, he had something in mind that maybe, i could think about for the future.  As it turns out, my original plan was only half going somewhere so i decided to work with B.

After some emails back and forth, the “marriage” between Stax and cittizen™ occurred.  cittizen™is “an apparel brand celebrating and commenting on all things Trinbagonian” and as you can see from their logo on their site, the focus is on “trini centric apparel”.  what better company would i, a Trini living away from home, want to work with to create/produce my T-Shirts.  

You may have noticed their logo at the top of my blog; it actually links to their website.  Make a visit and check out their garb; i’ve already seen one that i want.  it’s a picture of the red, black and white fingerprint – daiz BOSS.

BG12 was approved…buh bye ominous threat of brain infection (that i may not even know i have), hello possible nausea, diarrhea and stomach indigestion.  lol

seriously, now on to the (possible) fun and games to get on it.