Author: Stax

wow!

cooler fete 2013 was NOT shut down..we partied and had a good time till 6am the next morning and weren’t bothered at all by the morons 🙂

hopefully the promoters will continue having the party in that place going forward and the fete will get back its good vibe that it’s been lacking for the past few years.  i used my scooter and it was FULLY initiated – it wine dong d place (and get wine on), drank alcohol and even had a doubles or 2 – lol…all in all a rhell good time.

Nothing to report on the MS front…i go back for my 2nd steroid treatment on Friday and start Tecfidera next week.

On another note.  got a phone call today asking me when was my last infusion and shouldn’t i be thinking about scheduling May’s infusion right about now?  the call was from THE SAME PEOPLE WHO CALLED THE LAST TIME TO SCHEDULE THE TECFIDERA!!!!!!!!!!!!  oh my goodness – the shit is right there “in your computer” (as the people say).  i’m happy to report that i didn’t get my panties in a bunch, i didn’t have any attitude.  i just rolled my eyes, sighed inside and answered the lady’s questions.  one of the questions she asked me was, “did you talk to your doctor about this?”…sigh.

i know allyuh feel i make this shit up but i swear to u, it’s the truth.

earlier went like this…

we discussed the ampyra and then i asked about Tecfidera (oh boy.  i figured i might as well schedule it now because i’ll wake up tomorrow morning and it’ll be June)…he had to transfer me and placed me on hold.  of course

8 minutes later…

someone else answered and original fella was GONE so i had to explain myself all over again (of course)…and i won’t give u all the details but my question was,

LOL.  unbelievable…

i have NEVER seen my vein protrude/stand up at attention like it did on Friday when i went in for my 1st rounds of steroids.  it was unbelievable…Anita went as far as to call over the other nurses to “look at this! wow..come see, come see.  this has never happened in here before”.  it was unreal!

anyway, so it was administered; there were no issues although the 1 thing that i forgot bout the process is that it leaves one helluva NASTY metallic taste in ur mouth.  it’s almost like everything jes tastes bitter for a while after…i ate a few pieces of candy to see if that would make a difference and it did but only for as long as it was in my mouth.  for a few hrs after, i still had that bitter after taste hanging around.  say what, small price to pay.

so far, so good…nothing else to report

yesterday morning i got a call from a pharmacy…still not sure WHAT pharmacy but the chick said that the pharmacy works with Biogen (the maker of Tecfidera) and supplies patients with the drug.  so i told her that MY pharmacy is Caremark and i usually work with them to get my medication shipped etc etc. She responded that HER pharmacy partners with Biogen to

that’s when she told me that i won’t have to pay for the drug because the patients on the quick start program are the ones whose insurance are not paying for the drug and Biogen will supply for free.

Well now i’m more confused!  i swear Caremark automated service has been calling me every friggin day to set up the drug shipment; i’m not sure just how many representatives i’ve told that my doctor wants to start the ting in June!!  and i’ve already confirmed that my copay is $50 and i was placed on the list for the special $10 copay program so i’m not sure what the ass is really going on!

so…bottom line – she is going to call me back on 5/28 by which time i should have spoken to Caremark to set up shipment, confirm payment etc so i’ll be able to tell her whether or not to send me the drug.  I named this post “and the games have started” but hopefully everything will work out at the end of the month.

*SMH*…it’s really all i can do

btw, today is my first steroid session.  i really am just keeping my fingers, eyes, toes, legs crossed that i have no kinda setback and things go as well as they can going forward.

Ah gone so…allyuh hol it dong and have a great weekend!

dare i look forward to this?  setups!  it’s indoors this year (that sucks) so they have absolutely NO reason to shut it down do they?  will the asshole, moronic cop (i have come to the realization that cops are MORONS) whose sole purpose in life is to find out where cooler fete is every year (u cyah tell me he doh exist) and make life miserable for those of us who go and have high hopes every, flippin, year find a reason?  yeah he will…probably will say that we obstructing the road because of the parking situation or something.  i’ll keep u posted…