Oh Geez

So. Yesterday, I got the call re:my titer levels.  They’re too high and I can’t go back on tysabri…SIGH.

My doctor will like me to get started on gilenya as soon as possible. In fact, I was instructed to stop the Tecfidera one time. So I go in on Friday afternoon to get checked out for gilenya – essentially, they have to make sure I’m healthy (other than kiss meh ass MS). They need to do:
  • An EKG
  • Ah eye test (cuz one of the potential side effects is macular edema)
  • Blood work
After those results come back and I’m given the okay, the first dose of gilenya will be scheduled. This drug slows down the heart rate the first time it’s taken so they monitor patients for 6 hours that first time – “I can’t fcuking wait”…Ur heart rate goes back up (usually) by the end of that time period and will eventually go back to normal in 30 days. 
Gilenya is a once a day pill and Dr. Gilbert actually prefers it to Tecfidera (he says it’s a stronger drug) so we’ll see. Stacey prefers and wants Tysabri but I guess we can’t always have what we want.

i hate fucking MS

2013 in Some Pictures

In Vegas, we had to ask for the accessible shuttle to take us to the hotel
the 7 blind mice…whose idea was this?  who knows…but we having good times in Vegas
Let the good times begin in Miami (Miami carnival)
Assenna Orgenetnom, how meh boy (who i didn’t know) woulda pull this off with a basket in front???

Driving thru the party – doh get tie up!

MS Walkers 2013
Everyone loves the scooter I
this is an old picture…but everyone loves the scooter II
Everybody loves the scooter III

Good times in Vegas cont’d 

Getting my eyebrow pierced

Ready for 2014…

Pimp my Ride

K….this isn’t mine but this is exactly what it looks like and i have a basket in the front
Needed a upholder because driving, steering and holding a cup just didn’t go together

My cars have been Stax1, Stax2 and Stax3 – i thought this made perfect sense

My cane is actually only “posed” for the picture because the cane holder that can actually be used with the scooter was too expensive

 so…the scooter also has a basket (as i mentioned up top).

  • Without the basket, it’s cool
  • With the basket, it loses all its “coolness” (in my book) so the only time i really use the basket is when i go to check the mail 🙂

 Hope you had a lil chuckle…i gone so…

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