i’ve had this feeling in my left (of course it’s that more affected left side) arm for a long time..i’m not sure how else to describe it, but a feeling. you know how when u hit ur funny bone and u get that weird feeling? it’s not pain, it’s not an itch…it’s just a weird feeling. well that’s what i’ve felt…and, what i noticed was that when it got more intense, that’s really when my left hand would act up; it starts to clench up and not for hell could i open it unless i pry it open – great! well, i’ve been living with that for a while – told my doctor of course, but as usual i just chalked it up to one of those things and there were times that i didn’t even notice it (actually, i’d spoken to another MS patient once and she said that she has the same kinda thing – it’s such a good feeling to know that it’s not just u). anyhoo, about 3 weeks into November the feeling became PAIN!!
oh great! the pain felt like…u know when a muscle is about to cramp up and u jes know that if you stretch it in another direction or something, it won’t turn into a full fledged cramp? well yes thats how the pain felt; problem was that i wasn’t sure exactly how to position my arm for me to get some relief. it would happen, but it wasn’t something specific that i was doing – i would just get lucky. the pain was most intense at night but once i got into bed, it would ease up…well, i didn’t do anything about it and went to the MSCA on 12/18 for my infusion. when i told Beverly the nurse practitioner, about it, she decided to administer (intravenously) some steroids. i was skeptical (because of course, it’s steroids) but she made me feel okay about it and i must say that the pain just disappeared. I saw my doctor later that day and he actually prescribed some more (oral) steroids for me to use if i wanted (i left for home 2 days after so couldn’t go back for the 2 additional doses of IV steroids that they would normally give) but i actually didn’t fill it because i’ve heard horror stories bout the oral drug. MS! gotta love it right? wrong! but i do have to live with it.
anyway, so i’m home. i’ll probably try to post once or twice again but please don’t hold me to it; i’m not making any promises. allyuh hol it dong until i return or post again (maybe)
oh, just in case i don’t…
Merry Christmas, 2013 will be good to you, Love YA Uncle Oil
Merry Christmas to you too, Stax.
Don't believe everything you read about the steroids; they affect us all a little differently. I've had great results from them, both the IV and the oral. So never say never until you try.
I hope the pain stays away.
Merry Christmas to and yours Stax!